Posts by Administrator


IDSA News Release - Special Review Panel Unanimously Upholds Lyme Disease Treatment Guidelines.

A special Review Panel has unanimously agreed that no changes need be made to the 2006 Lyme disease treatment guidelines developed by the Infectious Diseases Society of America (IDSA), the nation’s pre-eminent authority on infectious diseases.

In Public Announcements on 27/04/2010

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NHS SCR Roll-out Controversy

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The BMA has criticised the roll-out of the Summary Care Record programme, claiming patients do not have enough information and that it is too hard for them to opt out if they want to.

In Newspaper, Journal and Magazine Articles on 11/03/2010

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Basic Lyme: An Introduction to Testing and Treatment of Tick Borne Disease For Medical Professionals

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A one day conference for physicians has been scheduled by the International Lyme and Associated Diseases Society (ILADS) in London for June 12th 2010. The event will be held at the Royal College of Obstetricians and Gynaecologists in London and is open to all European Doctors and Healthcare ...

In The importance of following the correct Guidelines on 04/01/2010

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Lyme Disease - the danger that can lie in wait on an innocent country walk

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A Daily Mail Report.... Jonathan Oakton, 51, suffered for 14 years before he was finally diagnosed with Lyme disease in 2006. The father of two, from Redditch, Worcestershire, believes he was bitten during a paintballing game shortly after he married his wife Anne. 'About a week later, I ...

In Newspaper, Journal and Magazine Articles on 21/11/2009

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Nurses with Lyme disease form Oregon group

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Mail Tribune. Bill Kettler Nov 15th 2009 They say that Oregon needs better resources to treat the misunderstood malady. Put two nurses with 70 years of combined experience in the same room and chances are they'll find plenty to talk about. When both have Lyme disease, the conversation ...

In Newspaper, Journal and Magazine Articles on 15/11/2009

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Lyme Disease In Ireland Part 2

RTE The Weekly Ryan. Radio interview with Dr Eoin Healy - Lyme Disease Part Two. Click here to listen

In Radio Clips on 03/09/2009

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Lyme Disease In Ireland Part 1

RTE The Weekly Ryan. Radio interview with Nail McDermott - Lyme Disease Part One. Click below to listen :

In Radio Clips on 02/09/2009

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Raffle organised by Essex Supporters

Supporters and friends in Essex are organising a Raffle to be drawn at CDL on or before 18th November. Donated prizes will include: Free seven day rental of a Spanish Apartment for 4 people. Trial Flight in a Motor Glider from an Essex airfield. Wash Cut & Finish at any UK Hairgroup salon. £30 ...

In Fundraising and Donations on 19/08/2009

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Deet Warning. Common insect repellent affects nervous system.

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One of the world's most common insect repellents used ward off ticks, has been found to act on the nervous system in the same way as some insecticides: a study. By Marlowe Hood (AFP) – 1 day ago. PARIS — One of the world's most common insect repellents acts on the central nervous system in ...

In Newspaper, Journal and Magazine Articles on 06/08/2009

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Breakout fuels killer chipmunk concerns.

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Vicious chipmunks that escaped from a British park four years ago have never been found - and could now have bred into a horde thousands strong carrying disease, The Sun can always be relied upon to reveal the fun side!

In Newspaper, Journal and Magazine Articles on 27/07/2009

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The Power Of Truth

Tina Garcia's interview with Dr Joseph Jemsek appears in the June issue of Public Health Alert.

In Newspaper, Journal and Magazine Articles on 15/07/2009

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USA Guidline Public Hearing

IDSA Lyme Open Public Hearing. The Review Panel will hold an open public hearing on July 30 2009 in Washington DC. The hearing, which had been planned for April 27, has been postponed to allow potential presenters more time to prepare and make travel arrangements.

In Public Announcements on 30/06/2009

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Lyme disease questionnaire

Did you know? There are 5 subspecies of Borrelia burgdorferi, over 100 strains in the US, and 300 strains worldwide! This diversity is thought to contribute to Borrelia burgdorferi's antigenic variability and its various antibiotic resistances. Got Lyme? Identifying the symptoms of Lyme Disease ...

In The importance of following the correct Guidelines on 27/06/2009

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Dr Jemseks interview with Tina Garcia June 2009 - part 2

Part two of this amazing interview....... Dr Jemsek's message to doctors is "get real!" Learn some humility, be honest, and it will set you free. Then you will be the kind of doctor you wanted to be when you started out from day one. But if you cover yourself up with false pride and arrogance, ...

In Jemsek Specialty Clinic on 20/06/2009

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Somerset Raffle organised by Tina Hayes

Tina and friends are organising a Raffle to be drawn at Baltonsborough Flower Show, Somerset on 31st August. Donated prizes will include: Flight in a glider kindly donated by Mendip Gliding Club Haircut and Blow Dry donated by Bojangles in Street French Manicure donated by Remidi in ...

In Fundraising and Donations on 20/06/2009

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Number 10's predictable response to proposed UK Lyme guidline changes.

Government response to the epetition states: The Health Protection Agency (HPA) provides guidance for clinicians on the diagnosis and treatment of Lyme disease, and advice for the public on the prevention of tick bites, which is published on its website. That guidance is appropriate for the UK, ...

In Public Announcements on 12/06/2009

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USA Approve Bill Supporting The Use Of Long-Term Antibiotics For The Treatment Of Lyme Disease

The Connecticut House of Representatives has unanimously approved a bill designed to give doctors a freer hand in prescribing for Lyme disease. Effective July 1st 2009. Substitute House Bill No. 6200 - Effective July 1, 2009 - Public Act No. 09-128. AN ACT CONCERNING THE USE OF LONG-TERM ...

In Public Announcements on 06/06/2009

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BBC Lyme Disease warning for campers

As the number of cases of Lyme Disease in Scotland rises those heading outdoors this summer are being warned to guard against ticks. BBC Scotland's health correspondent, Eleanor Bradford reports.

In TV clips on 03/06/2009

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Dr Jemseks interview with Tina Garcia June 2009 - part 1

The Power of Truth Spoken by Joseph G. Jemsek, M.D. Extract: We do a horrible job of dealing with chronic illness. In a strange way, the Lyme epidemic may be the tipping point for making significant change, because it is so painful and so complex that it's going to force us to finally work it ...

In Jemsek Specialty Clinic on 03/06/2009

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Raffle events

Supporters will be organising Raffle draws over the coming months with many excellent prizes already being pledged. Lotteries and Raffles have to follow strict conditions set by the Gambling Commission - LymeAppeal licence number is LN/009403682. Draws will be made in a public place with at least ...

In Fundraising and Donations on 01/06/2009

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North-east Lyme disease sufferer urges change to medical guidelines

Reporter Joanna Skailes from The Press and Journal interviews Nicola Seal who has so far paid £10,000 for Lyme disease treatment and calls for doctors to be more aware of the condition. Follow this ...

In Newspaper, Journal and Magazine Articles on 01/06/2009

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Under Our Skin

An infectious film about microbes, money and medicine. One of the most controversial illnesses in the history of medicine, Lyme disease may be the fastest growing infectious disease in the United States. Yet each year thousands are misdiagnosed - many of them told that their symptoms are "all in ...

In Documentary clips on 31/05/2009

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Lyme Disease - MS Misdiagnosis

Four doctors told Susan Mercurio she had MS. Kay Lyon's daughter was prescribed powerful psychiatric drugs and sent to a locked ward. Both had been misdiagnosed; they really suffered from Lyme disease, the tick borne disease that's spreading throughout the World.

In TV clips on 30/05/2009

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Under The Eightball

About Under The Eightball In the summer of 2006 my sister Lori was afflicted with an illness that, ten months later, has yet to be definitively diagnosed. Less than one year ago she had full function of her body, regularly riding bicycles, swimming and gardening with her son Jackson. One day, ...

In Documentary clips on 29/05/2009

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BBC Tick bite risk in countryside

Featuring Wendy Fox, experts have warned campers and walkers they could be at increased risk of being bitten by ticks which could cause Lyme disease. Follow this link

In TV clips on 27/05/2009

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Ria featured in May Patient Spotlight

Read the May 2009 Jemsek Specialty Clinic J-Letter

In Jemsek Specialty Clinic on 15/05/2009

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Under Our Skin Premieres Into the Light Gala

Hosted by the Jemsek Specialty Clinic of South Carolina, the Into The Light Gala event was sponsored by the highly successful New York City based Turn the Corner Foundation, a not-for-profit public charity dedicated to the support of ...

In Jemsek Specialty Clinic on 15/05/2009

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Jemsek Specialty Clinic's Mission

The mission of the Jemsek Specialty Clinic is to provide the highest standard of care and compassion to patients, to engage in research, and to be a model of excellence to those serving the Lyme community worldwide.

In Jemsek Specialty Clinic on 15/05/2009

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Car Boot Sales organised by Tina Hayes and Ria’s friends

Friends have been donating and collecting goodies over the past few weeks and will be running a boot sale stall once a month at Yeovil Showground, Somerset beginning Sunday 24th May with all proceeds being donated to LymeAppeal.

In Fundraising and Donations on 14/05/2009

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"Smartie" fundraiser organised by Tina Hayes

Many of Ria’s friends, family and colleagues have all been given a tube of Smarties by Tina (donated by a local newsagent). Once the contents have been consumed, they will fill the empty tube with £1 coins over a period of weeks and give it back to Tina – you’ll be surprised how much a single tube ...

In Fundraising and Donations on 14/05/2009

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Certainly NOT a rare disease

The recent Gazette article resulted in comments and responses from fourteen local Lyme Disease sufferers - it is therefore quite apparent this is NOT as rare as the NHS PCT would like us to believe. In fact the Gazette have covered other Lyme stories in the recent past including this one

In Ria goes public on 07/05/2009

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Good public response to the Gazette article

Public comments landed on the Gazette website thick and fast and these have now been transferred below by the Administrator. Please register and continue to post if you wish....

In Ria goes public on 06/05/2009

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Ria's plight is published in the Gazette

After giving the PCT an opportunity to respond, the Gazette published a good piece today. Ria Heslop says...... I want to personally thank Lynne Milford and the Gazette for their accurate portrayal of my story in the article they published on 6 May 2009. I also wish to add the following…… An ...

In Ria goes public on 06/05/2009

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Colchester Gazette

10:05am Lynne Milford from the Gazette arrived together with a photographer to interview Ria about her story. She appeared to be very understanding and sympathetic and suggested that, in her view, the content of the article was important enough to be covered. Lynne would contact the PCT for their ...

In Ria goes public on 01/05/2009

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Approved Bill in Connecticut rejects IDSA Guidelines

The Connecticut House of Representatives has unanimously approved a bill designed to give doctors a freer hand in prescribing for Lyme disease.

In The importance of following the correct Guidelines on 30/04/2009

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Scotland adopt their own Lyme Disease Testing and Diagnosis

Audit of the laboratory diagnosis of Lyme disease in Scotland. Roger Evans, Sally Mavin and Darrel O Ho-Yen Microbiology Department, NHS Highland, Raigmore Hospital, Inverness IV2 3UJ, UK Received 31 December 2004 Accepted 22 August 2005 An audit was performed on the laboratory ...

In The importance of following the correct Guidelines on 29/04/2009

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Germany Says No to IDSA Guidlines

The Deutsche Borreliose-Gesellschaft (German Society of Lyme-Borreliosis)raises objections to the IDSA Lyme Guidelines published in 2006. The fundamental basis for their objection is that the implementation of the IDSA guidelines extends beyond the United States and into Europe.

In The importance of following the correct Guidelines on 29/04/2009

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Lyme Disease Action say HPA/IDSA guidelines are not applicable in UK

During April 2009, Lyme Disease Action (LDA) provides evidence to the IDSA Review Panel that the 2006 IDSA Guidelines for The Clinical Assessment, Treatment, and Prevention of Lyme Disease are not applicable to the UK.

In The importance of following the correct Guidelines on 28/04/2009

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Attorney General's Investigaion Into Flawed IDSA Guidlines

The Attorney General's investigation reveals that the IDSA Lyme Disease Guideline Process is seriously flawed and the IDSA agrees to re-assess these guidelines and install an Independent Arbiter. Read the complete investigation report.

In The importance of following the correct Guidelines on 27/04/2009

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IDSA guidelines challenged by American Physicians & Surgeons

More recently, on 26 April 2009, these IDSA guidelines have been challenged by the Association of American Physicians and Surgeons (AAPS) who unreservedly object to these overly rigid treatment guidelines.

In The importance of following the correct Guidelines on 26/04/2009

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Lyme Disease & Chronic Fatigue Syndrome - A Patient-Researcher's Perspective

A UK-based patient/researcher offers information on borreliosis (Lyme disease), and a perspective on the difficulty of accurate testing for its presence - particularly for those currently diagnosed with 'chronic fatigue syndrome' (ME/CFS), fibromyalgia, and a host of other illnesses Lyme is known ...

In Research on 01/08/2007

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Professor commits suicide

The Mail reports; One of the country's top experts on modern life may have killed himself after catching a rare brain disease from a tiny insect bite. Follow this ...

In Newspaper, Journal and Magazine Articles on 18/09/2006

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Appeal Progress

The current appeal is attempting to raise £28000 towards the cost of Lyme Disease and co-infection treatment for Ria Heslop.

This appeal was launched on 01/05/2009 and we have raised £7246.

Details and conditions of this appeal can be found here.

Sincere thanks go out to all those who have so generously donated money and those that have organised and assisted with the fund raising incentive.

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£7246

Make a donation

If you would like to make a donation you can do so securely using Paypal.

Lyme Resources

The links below are all helpful resources for those interested to learn more about Lyme Disease and related subjects:

Special Thanks

Boots

Boots Pharmacy
Tollgate Colchester

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